Sunday, 31 March 2024

Well it's been 3 years in the coming. Here's why.

 Well I'm in a mess and don't really know what to do. This ever constant pain that never goes away even for half hour, I can sort of deal with that. The brain pain is the mess. The black pit has a ledge that I can't seem to scramble over. I'm not in the depths right now, I have been but I've managed to scramble onto this ledge where I'm now sitting waiting for a torch to find my way up and out of this hole.

You see, I've lost all my confidence. Every scrap has vanished. For over fifty years I've struggled to understand this hearing world but it seems to me that while I put in more effort to understand them, most of them don't even bother to hide their impatience. I've given up.

Far far better to not go out, stay home where all I have to do is cope and fight the pain and not have to worry about lip-reading and bloody people.

So what's the answer to that? Can't change the world, given up on thicommunication lark.

How the heck can I explain what it feels like? I can't. All I can do is ask you all, my family, my friends to be understanding-- the best you can be. I know I'm not easy to live with and be in the company of, I'm fully aware of that. But I will find my way over this ledge. I will. Unfortunately t's not something anyone can help me with, I must find my own way up and out because only i can do that. I have to do it my way though and that means you all need to let me get on with it. That's not me being rude, I honestly mean no offence.

It's ever so hard to cope with, this constant pain and weakness. My legs just don't want to carry me any more. It's like they've said “right, we've put up with loads of abuse over the years, we've taken you further than most legs carry their body and you've totally ignored us.All those hours of being in the saddle. All those miles of walking and cycling. We're now retired and going to make you notice us now! “ And so they do, using every trick in the book, they never stop with the burning, aching and painful games they play.Then the old spine joins in. Then the neck and shoulder blade. But really I can cope with that. Obviously just lately I've been relying on meds to help with it all, I don't like that really but the moment I can get the pain level down to five I know I'll be putting the meds aside. I'm not addicted, I do know that's a worry of some of you but it's really not happening. I just need the morphine to get me over the tsunami of pain.

I'm so tired.This nearly constant 24\7 exhaustion that I can't understand.

So this is me saying I'm in a mess so will you all send me strength and just support me by being patient and try to understand. You can't possibly understand fully, it's not somethinganyone understands without being like me. And I truly truly wouldn't want you to be!

Much love and blessings. Xxx

Sunday, 24 January 2021

I don't know....

 I don't know what to do about this blog. For now I'll just put up my art on the art page,while I think on what to do. I don't think I've many followers,nor did I have  many followers,so I can't see the point in keeping it if no one going to read it. 

We will see.



Saturday, 3 November 2018

Cosmetics for a change

I've recently treated myself to some new makeup products, all by either W7 or Technic, both British brands and as far as I have read, both cruelty-free. What's even better is that they are drugstore prices proving that you don't have to spend £25 quid on a lip liner or £80 for face foundation, these brands are, in my experience, good quality products working just as well as more expensive similar items. The eyeshadows are a little on the weak side but there's always adding more layers and that works well. So if you are on the side of not much money to spare try these brands, You surely won't regret it.
I do like my beauty products and I'm happy to try out anything, that why I have a monthly subscription to Glossy Box. It's good to open it up and see what's inside.
I also have regular Avon products, I'm lucky in that my Avon lady lives only two doors down from our house. I especially like their perfumes and think for the prices they smell just as nice as far more expensive stuff. Having said that I gotta say that Ysatis by Givenchy is my most loved perfume but sadly rarely afford it and no one treats me to any at birthdays or Yule.

W7
Technic Cosmetics
glossybox.co.uk
Avon UK
Ysatis

Sunday, 28 October 2018

Cave and black holes

I don't feel like talking just lately, not even to my OH or my dog. Talk I must because by talking I'm keeping sociable which is important when you suffer the downs of bipolar. It's so easy to lock yourself away keeping the outside world nonexistent. To you it might seem easy to talk and mingle with society, you might even be saying to yourself "oh come on stop being a mardarse and get on with it" or my mother's favourite expression "pull your socks up and do some work". So easy to talk isn't it, unfortunately when you've got some mental health problem it's not. You go into yourself, into the black hole as I call it. The black hole is when you get so low you go past the 'cave' stage* and down and down some more until you're rock bottom. Then you're in trouble darling. Thankfully I'm not at rock bottom, I'm holding onto the edge of the black hole feet dangling over the deep, fingers white with gripping to avoid falling down.
Am I talking nonsense? To you maybe but anyone who suffers like me will understand only too well.
*Cave stage is when you begin to avoid people, hermit like. You go into your cave to be alone.

posted from Bloggeroid

Wednesday, 24 October 2018

Just a normal day...

You know I did decide this morning that I was going to sort out my corner and make it more studio like, as much as you can in such a small space. I need one set of shelves (those pine three shelves to a unit) for my art stuff then the other set will house my pagan stuff. Before I can do anything I need to clear the shelves off, put the numerous paperbacks and hard back books in a cardboard box for taking up the garage until I've decided what to do with them. Do these books sell on Amazon or eBay? I need to have a bit of a nose.
However, I had a shower and washed my hair which has left me exhausted. I can't even summon the strength to turn the washing machine on. Never mind.
I went to the doctor's yesterday to see the vampire nurse. She surprised me by telling me that the doctor had ordered an ECG reading. First I heard of it. Anyway I had to get undressed, oh the mither, had I known I was having one I'd have put a better outfit on. As it is there was much fuss while my hubby helped me get undressed. I really hate that, I feel so silly not being able to get undressed/dressed by myself. I've no idea what the result was because she didn't show me. I also has four vials blood taken. Shockingly it's reddish colour and not the green stuff I was expecting, green as in alien. Lol. I always like to crack a joke with the nurses to put them at ease as many don't really know how to communicate with me so a well timed joke can help.
It's a lovely day outside. One of the late autumn sunshine days. Everywhere feels so peaceful. I'd love to get out in the garden but it's not going to happen. Not today at any rate.
I've gone very drowsy so I'll sign of now. Have a grand day everyone. Much love and "keep on fighting you fibro warriors!" X

Monday, 22 October 2018

Wherein she moans and groans just cos she can!

Just lately I've been living in my bed. Reason? I'm suffering a M.E /fibromyalgia flare up maybe brought on by my changing meds*. Whatever, I've been unable to walk very far; from the bed to kitchen is about all I can manage. Sometimes my legs just shake uncontrollably, weaken and leave me shuffling back to bed. Other times my arms go lifeless, the skin tingling and so painful, I cannot, try as I might, do anything during these times.

My back is a whole different story. It is so painful I cannot describe it. It is even stopping me from doing a poo (tmi I know but I can't help it, I'm talking real life where people pee, poo and be sick.) All I can do is get comfy on the bed, having tried and failed to find some ease on the sofa.

I'm living a permanent brain fog. How my OH keeps patient I'll never know. I get my words wrong, I cannot Lip read at a decent level, forgetfulness and clumsiness are par for the course. What our carers put up with! So silent, it feels like no one ever thinks to give them recognition or thanks them, for where would we be without them?

Something is making me hold fluid around rib cage so I've got to have my blood taken by the resident nurse Vampire. I wonder what shape bruise I'll get from her looking around with a needle trying to find a vein. How many men (and women) would like to be in my position, a Carry On film.😁

Seriously I hate being like this but what can I do? I try to do as much as possible, those chores I can do round the house, drawing, painting, crochet, writing etc. Breakfast in bed? Haha as if. Just dinner I'm afraid.

“I wish I could lie in bed all day” I hear some mutter, no you really don't. I'm not here by choice this is forced on me. Please don't insult me with such mutterings. I'm not idle, I'm not a waster: I'm a once very active manual worker whose body got ill. I don't wish that on you, I couldn't be so cruel.

Listen I feel I need to emphasise this, I am not by any means after sympathy. I hate sympathy. I don't want it. Nice of you to offer but no thanks.

I'm relating my life story and at the moment it's not brilliant but I'm ok, I'm getting on a it. How are my fellow sufferers? Doing ok I hope.

*I'm on my last leg of changing meds from one brain helper to another. The first Mirtazapine, although very good in helping my brain, has made me put on stacks of weight, which doesn't help my back and hips at all, this is a well known fact /side effect and they even have the alternative Trazadone to it which is what I'm changing to now. Fingers crossed they help me lose weight yet also do the job on my old brain. Bipolar eh, who'd have it off me? Any takers? Nah didn't think so. 😁

I shall apologise for the rubbish flow that this post has. The aforementioned brain fog isn't helping. Anyway just see it as a grammar test.😁
posted from Bloggeroid

Saturday, 20 October 2018

Another post that is about three weeks late....

Autumn is with us, Mabon creeps up and halloween and christmas things are in the shops. I like this time of year, its pleasant I think. Yes it’s chillier, wetter (well it is at the moment) but much more comfortable than those hot sweltering days of summer. I was only saying the other week, I see the seasons like this - Summer is bustling, busy and filled with scents of flowers, ice cream and grass cutting, the sun is hot and fiery,demanding attention. Autumn starts to quieten down, the land gets less busy although the colours are still abundant. A crispness fills the air and the wet days are still warmish. Winter is of course the sleeping time, the land gets hushed which you notice more after a snowfall. It’s icy blue and white colours are stark; when the sun shines, and it does sometimes, it’s a piercing harsh brightness. Spring is newness with the colours of hope, the sun is gentle and the rain urgently does it’s job. I’ve not really a favourite season although I’m not much for very hot summers nor the opposite freezing of Winter. Have you got a fave?

***
I did something earlier this week which I never thought I would do. It took a great deal of gulping and swallowing and a number of starts to admit to my hubby that I can no longer manage the cleaning up. I can’t vacuum without getting down on hands and knees and end up struggling to get back up while other chores leave me in increased pain and with no energy. For someone who loves a very clean home this upsets me, I’ve always done my housework with gusto, I like being clean and tidy, knowing that a finger run along my shelves would come back sparkling. To be unable to do that now is bothering me. I wish I could afford a cleaner to come every week or fortnight even but I can’t and hubby is now going to do a major part of it for me, I’ll do the easiest chores while he does the heavy cleaning. Like I say, it took a lot to admit to this and I’m still upset about having to!

***
After losing Zaffi I have no interest in getting another dog. We’ve still got Lulu and she is loving being the only one, she doesn’t seem to mind at all. Every so often her mate Bella comes round to stay or to spend time with her and that seems sufficient for Lulu. I’m surprised with myself tbh as some years ago I’d be already on the lookout for another youngster to train but right now I’m not interested. Nothing would be a patch on Zaffi, who was more my familiar than a dog. I’d find myself comparing and that wouldn't be right at all, another dog would be here on its own merit not as a replacement to Zaffi. Hence its important that I am honest and say ‘No’ to any mentions of a new dog. Maybe one day I’ll be ready but until then...

Wednesday, 12 September 2018

Random Acts of thinking



Autumn is with us, Mabon creeps up and Halloween and Christmas things are in the shops. I like this time of year, it's pleasant I think. Yes, it’s chillier, wetter (well it is at the moment) but much more comfortable than those hot sweltering days of summer. I was only saying the other week, I see the seasons like this - Summer is bustling, busy and filled with scents of flowers, ice cream and grass cutting, the sun is hot and fiery, demanding attention. Autumn starts to quieten down, the land gets less busy although the colours are still abundant. A crispness fills the air and the wet days are still warmish. Winter is, of course, the sleeping time, the land gets hushed which you notice more after a snowfall. It’s icy blue and white colours are stark; when the sun shines, and it does sometimes, it’s a piercing harsh brightness. Spring is newness with the colours of hope, the sun is gentle and the rain urgently does it’s job. I’ve not really a favourite season although I’m not much for very hot summers nor the opposite freezing of Winter. Have you got a fave?




***

I did something earlier this week which I never thought I would do. It took a great deal of gulping and swallowing and a number of starts to admit to my hubby that I can no longer manage the cleaning up. I can’t vacuum without getting down on hands and knees and end up struggling to get back up while other chores leave me in increased pain and with no energy. For someone who loves a very clean home, this upsets me, I’ve always done my housework with gusto, I like being clean and tidy, knowing that a finger run along my shelves would come back sparkling. To be unable to do that now is bothering me. I wish I could afford a cleaner to come every week or fortnight even but I can’t and hubby is now going to do a major part of it for me, I’ll do the easiest chores while he does the heavy cleaning. Like I say, it took a lot to admit to this and I’m still upset about having to!




***

After losing Zaffi I have no interest in getting another dog. We’ve still got Lulu and she is loving being the only one, she doesn’t seem to mind at all. Every so often her mate Bella comes round to stay or to spend time with her and that seems sufficient for Lulu. I’m surprised with myself tbh as some years ago I’d be already on the lookout for another youngster to train but right now I’m not interested. Nothing would be a patch on Zaffi, who was more my familiar than a dog. I’d find myself comparing and that wouldn't be right at all, another dog would be here on its own merit not as a replacement to Zaffi. Hence it's important that I am honest and say ‘No’ to any mentions of a new dog. Maybe one day I’ll be ready but until then...

Friday, 10 August 2018

A late recognition of Lammas

The following was supposed to have been posted on the 1st August as I planned a grand celebration and ritual for Lammas. Instead I spent it in hospital feeling like a really poorly pincushion. Never one to let words go to waste I've decided to post it now; better late than never eh.



Here it comes - Lammas aka Lughsanagh. The start of the harvest months in which we celebrate all things bountiful, hopefully, if things aren't bountiful then goddess help us because the government won't. Ever heard of John Barleycorn? He comes out of the cupboard now after spending these last month's snoring away the spring and summer. Corn dollies appear and celebrations of cutting the first corn along with them. I wonder, do any of today's farmers actually do this? I hope they do, even if it's just a pint in the pub at the end of the day. We should keep these old traditions alive like our forefathers did, they always managed to find something to have a sup and a knees up for.
Today I'll decorate my altar and perhaps I'll show you later; we're having a feast supper tonight, Thai Red and Green curries. Not exactly olde England but seriously who cares.

I've started art work again and I'm so pleased and happy with it. Admittedly is lost much confidence but this latest dog portrait I'm working on is rapidly making me feel "yes! I still have it!" That's something I didn't think I'd be hearing my inner voice tell me this year. I'm thinking positive folks, that's another tick on my list of 'must do's' I'm doing well aren't?

posted from Bloggeroid

Sunday, 5 August 2018

Patients and pencils

I've just spent 24 hours under hospital observation for a suspected heart attack. All praise indeed to the staff at NDDH who go over and beyond to make sure you are comfortable and well informed while you're there. Honestly I don't think nurses can be paid enough. I'll just rephrase that, I don't think the nursing staff can be paid enough because as well as nurses you get the auxiliary workers who do plenty so should be included. What they all put up with off us Joe Public is embarrassing to say the least. For some people being in hospital seems to award them a standard set much higher than they would normally get. Nurses are expected to do it and do it NOW, regardless of other patients needs. Why some think that anyone in a caring role is there for their express desires beats me. Do they not realise that yes you might be in pain and or need the toilet but so do a whole ward off other patients. One word of advice for them is 'patience'. Be a patient patient. You'll get seen eventually, if you need the loo but can't get there then hold it in a while longer, plan ahead and make sure you've a bed pan to hand. It's common sense to me that if you're unable to walk to the loo you'll all for a couple of bed pans for emergency situations. Or just do as the old Babushka in the bed opposite me did and let it go. After all nurses have nothing better to do than to change your sodden sheets. Oh she was a major pain in the rump, was that old girl. She was too cold, too much in pain, too unable to walk despite walking into the ward in the first place and jumping in bed all by herself. One wonders what she's like at home, does she treat everyone as if they're there solely to wait on her hand and foot? I doubt it somehow. I know this will irritate many people, my calling patients out like this but if it does then you're one of them rump pains obviously.
Manners should exist everywhere and being unwell, in pain etc shouldn't mean they fly out through the window. Be patient, be kind, have a smile ready for those over worked nurses and a please and thank you doesn't go amiss. Try it. You might be pleasantly suprised at what happens next.

Hospital apart the week has been a steady routine one. I finally finished the portrait of Bella, my BFFFs little dog and she's rather happy with it, the human not the dog, I've no idea what the dog thinks, probably very little unless she attempts to eat it as she does most things recently. I'm pleased, not hundred percent happy as I'm still learning the art of coloured pencil, it's really not like watercolor painting at all. It's more time consuming, all the blending to achieve the desired effect doesn't happen in a couple of brush strokes. Would I go back to using paints? Not for animal portraits no, maybe for a change I'll do some watercolor landscapes (Yule cards will soon be required) but for me it's colour pencil all the way forward. I can only hope to get better at it.

posted from Bloggeroid

Sunday, 29 July 2018

I've made myself a studio corner in my bedroom. Sounds good right? I've got my half poster bed which turns into a double ended sofa with the use of a few a strategically placed cushions. Two bookshelves hold my art materials plus of course a few dozen books unrelated to art but where else to keep them I've no idea. I've a stool next to my ‘side table’ -actually a large cardboard box covered with an attractive piece of material and holding a couple of sheep's worth of wool- the two together form more work surfaces for holding my stuffs. Soon I'll only be able to shuffle sideways crab fashion as the only way to get to my bed to sit on it is by doing just that crab walk past boxes and chests.
Yeah my little studio corner is small and I'll admit to missing the old days of having a well lit room all for myself but needs must, they say, and the important part is that I've got back into art. A huge step forward after the recent years of being unable to even raise a smile never mind a pen.


Hi, it’s Daisy Mae. I just wanted to say a few words about something some of you might be going through yourselves.

The time has come for my baby girl to leave home allbeit for only 3 nights a week to go to art college, but my goodness it gives me the feels! 

She’s not 18 until March so I’m  especially worried about her staying in uni halls with older students. Particularly as her latest motto is “mum, what happens in halls stays in halls!”

I can’t wait for her to go and give me 3 nights of not being talked to death, but it’s going to be so hard! I’m worried, stressed, concerned, sad about her growing up, it’s all so much emotion in one go. 

Hey ho, gotta let them grow up and spread their wings sometime I suppose. 

Monday, 23 July 2018

A year ago...

Trying to work out what I've got to tell you that might be the slightest bit interesting, I came across a piece I wrote this time last year but never published.
Reading through this is rather good for me as I've changed so much since then and it really is good to know that my state of mind is much better now.
So here it is, one year ago I wrote...

Another lovely sunny late July morning. Height of summer just before we start sliding down into the cold months. What am I doing? Am I running round getting my chores done so that I can later relax and enjoy the day? Am I planning what next to turn my craft hand to? Am I packing a picnic lunch before heading out with the dogs to somewhere peaceful and quiet on the Moors? No, none of these exciting, wonderful days await me, only another day filled with wracking pain in every joint and even my skin. So I'm faced with another day lying in bed, taking painkillers that will send me to sleep so I can escape the pain for a few hours.

Every morning i wake full of hope that this will be the day I can move freely. Sometimes my hopes are fulfilled but this last week my hopes are shattered, just like my body. I am so sick of this, the pain, the hopelessness, the missing out on lovely days and everything that comes with them.

Is it my fault? Have I created this monster that lives with me day by day? No, it's not a product of my mind, it's very real and very here. There's nothing I can do, no amount of positive thinking cures me nor stops the pain. I'm at the mercy of a monster that lives in and on me, no Knight in shining armour is going to rescue me. This is my life now. I have to live it, have to fill the days when I'm able to function and accept the days I'm not. I hate it, it's not me, my body has turned into something I don't recognise and something I dislike.

And there's nothing I can do but accept it as my lot. Keep taking the pks Deb, and hope for the best.

Thursday, 5 July 2018

The slow responder

If you've said hello and I suddenly go, don't be mad,
never be sad, there's nothing bad. If there was I'd let you know.

If you've dropped me a line and it seems I decline to reply in a day or maybe since May, my blood you might bay. Hush up, my heart's still thine!

For I am a tardy, and not very hardy, responder of words,
I'd rather watch birds, and other things out there in the fresh natural air or write these rhymes, that have no rythym. Still, soon I'll be up to the times, tis best I keep with'em.
I do apologize. I may seem rude with a 'badass 'tude'
but my health is screwed. I really do sorry-ize!
( Ok ok I made that up but it rhymes, what d'ya want? Shakespeare?)

I'm back folks!!!🐝🐝🐝😊

posted from Bloggeroid

Thursday, 21 December 2017

And so we come to Yule

Happy Yule time readers.

I've been absent far too long due to personal problems I don't care to share right now, but I've not forgotten this blog of mine. It is like a tiny woodpecker at the back of my skull, tap tap don't forget the blog. Tappety tap tap, you must get writing for the blog.

Well I'll say this, it's been a right eventful year not just for me but for mine also. While I've been fighting health problems they've had their own battles to deal with. It's been a year of helping each other and ain't it grand to enter the fray knowing you're supported, that your back is covered.  2017 made me realise how much love my heart really holds and how much I care about those close to me.

Big and special thanks go to ‘my old man’ for his constant care, love, help, and watchful eye. Yes I know you get on my nerves sometimes and vice versa but I wouldn't be without you.

To my ‘wifey/systa/ bff/partner in crime’ for her stubborn refusal to walk away, for her persistent bossing me to come back to life, her love and care. She's the most genuine woman I've ever met and life would be totally boring and crap without her.

To my kids for learning about mum's illness and their steady stream of love.

To my ex for his understanding and daily checking up to see how I am.

To my gorgeous sister for keeping me up to date with family matters. I miss you so much, duck, I really do.

For my stunningly beautiful niece who has given me my equally achingly gorgeous first great-niece. What an adorable pair they make. Just know your old aunt loves you both so very much.

Without these people I'm really not sure where I'd be now, certainly not in the happy state I am in!

Finally a call out to readers of this blog. Your personal comments have not been ignored, they've kept me going through the darkest times. Apologies for the huge gaps in posts, I'm hopeful for a more productive year to come.

For everyone I give the heartiest blessings of peace, love and happiness.

Many blessings at Yule.

Thursday, 3 August 2017

Freewriting my way out

I can't write I'm brain numb I have no words. I can't even think straight never mind write and try as I do I can't change it. The ever constant rat called pain gnaws viciously at my bones, muscles, tendons until every single movement is hot searing grinding. shitty mess of a body, you've really betrayed me haven't you. I want you to píss off you bloody big bully. How dare you invade the once ever active fit and ready for anything mass that is me. Just go away. Leave me alone. I'm not going to the oh poor me room, I'm trying to fight you. Trying. The problem is the more I try the more you cling on with your ugly needle teeth, you dirty rat! Where's Jimmy Cagney when you want him? Even Humphrey would do cos I just need a little extra backup to deal with this bastard.  I can't write, my creative juices have dried up, gone on strike under the ever watchful gaze of chronic pain, see how the latter smirks! It's not going to win I won't let it. Yes I might be bedridden today but I might not tomorrow. I'll deal with you then. You won't win, twist that glowing red hot poker under my shoulder blade as much as you want, fill my joints with the burning sands of the Kalahari desert but you ain't going to win. Pour hot scalding water over my skin follow it up by the ants that crawl and make me itch, do as thou wilt but mark my words, I'll be back on my feet one day and soon, this is just a lull in the battle, my soldiers are having a few days rest. They're entitled. But make no mistake, I'll be back on my feet, out of bed and kicking your arse to the kerb. I will write again! I will paint again! I will mould shapes out of clay with my hands! I will write again! Look, what I've done, I wrote!


PS. Freewriting is just that. Letting the words tumble from your head into the pen without thinking of grammar, punctuation or any of that lark. Usually the writer will return later to see what can be made from those words, neaten it up, make it ship shape and typo free.
I'm not doing that, I want to leave it as it stands. Maybe one day I'll go back, revisit it but not today, not any day soon. I'm writing the pain away.

posted from Bloggeroid

Thursday, 30 March 2017

Sick and tired of being sick and tired

I've been absent due to tiredness. 

What kind of excuse is that? I hear you mutter, perhaps followed by more mutterings about how tired you've been but you've still gone to work, done the chores, looked after the kids, etc. If so then I sympathise, I've been a working mother myself so I understand your tiredness. However with all due respect unless you're a fibromite or have CFS/ ME or both then I really doubt you understand this tiredness of mine.

Listen, I'll come straight to the point here, imagine you've run up a treacle clad mountain, with a sack of coal on your back and carrying another sack of coal in each hand, while someone repeatedly hits your bones with a hammer and another keeps trying to prise your joints apart with a red hot tyre lever. Not to forget your brain being filled up with thick fog until you can hardly remember your name never mind anything else, plus your head pounded until it feels like it's going to burst, and the half kilo weights that have been sewn onto your eyelids, add to that the breathlessness, pain, and sheer exhaustion that makes even yawning difficult to do.

Until you've experienced that please don't try to tell me you know how I feel. Keep your advice to yourself; do you really think I've not tried everything to stop this? 

Giving up naps in the day, while it may help you with your normal tiredness, doesn't help me at all, in fact it makes things worse. Eating this and that energy giving food doesn't help much either. My gut isn't working properly, it too is exhausted and can't digest in the normal manner. Oh yes, in the beginning when I didn't understand fibro and CFS I did my damndest to overcome this horrible, life altering condition but as I became more knowledgeable, more experienced I soon realised that fighting it only made it stick around longer.

Be told and understand that I'm not idle, lazy, couch potato or bed loving. Nor is it all in my mind and imagined. I'm certainly not exaggerating.  

You tell me I should be thinking positively, come closer to say that and I'll show you a positive punch, well I would if I had the energy.

So here's what to do. Smile at me, wish me well, ask if there's anything you could help with like going to the loo, bring me a cup of tea even. Then just go away and let me get on with getting on through this latest episode.

Don't preach, don't try to jolly me along, don't even sit down and start a conversation because it'll be a one sided affair and you'll get a sore throat from talking too much. Just go away and leave me alone. I'll do what I can, maybe even manage the washing up if possible a task that needs no brain power and very little energy expenditure. Seriously, if I can manage a chore I will do so because there's nothing I like better than to be doing something, but that doesn't mean I'm ok. Doesn't mean I'm up to going shopping. It just means there's a little lull in the tsunami of exhaustion and I'm taking advantage of it.

So now you know what to do, say, how to act with me, can we please stop the remarks, and help and advice. Above all, stop thinking you know how I feel because I'm sure you don't. Unless you're a sufferer too.












Monday, 6 March 2017

Bodies, sleeve waving, Countdown, and lilies.

How do you get to love your body? How do you get to even like your body?
As a child I couldn't stand my little belly that was stuck to my body like a melting blancmonge along with that I'd got two dreadful large knees. They were the size of a shire horse's knees and stuck out at strange angles, so I thought. Later on as a teen my face (big nose with a furrow at the top stuck a moon sized and shape head) joined the list of undesirable body parts, followed by my flat as a pancake bottom.

I did like my breasts though, they were a little above average size and fulfilled my dream of having breasts like my aunty who I used to watch having a wash in the sink and would ask her questions, "do thothe butht hurt when they thwing?" I was very short tongued as a kid. Oh yes I was proud of my teenage butht. I liked them right into my 50s and then they turned into two empty saggy water balloons that rest on my belly when I sit down. I hate my bust! Not that I want anything to happen to them, I'm grateful I've got them but if only they had stayed put up at the top of my chest instead turning me into the wolf who raised Romulus and Remus.

I'm not going to mention my dislike for the old hairy prune that passes for my face. Nor shall I say anything about my teeth - tombstones turned yellow by years of taking antibiotics as a kid. I brush as often as four or five times a day with all these miracle teeth whitening pastes but it makes no difference. In a few years time I shall look like a mobile graveyard when I smile.

Is there anything I like about my body? Nope, not a single hair.
So what's the plan, the method for learning to like/love your body? Or is far too late for me

I put seed, fat balls and suet out for the garden birds.
I love watching them feed but just lately the starlings are back. Now I know starlings are dwindling and yes they're a beautiful bird but they're also very greedy and give the smaller birds no chance at getting to the food. So when I see more than three starlings on the feeders, I'll flap something at them through the window. Usually it's the sleeve of my pink fluffy dressing gown pulled down as far as I can to hang limply from the arm that's supposed to be in it but is now pulled up to look like a turkey wing. Waving the empty sleeve while I stand in front of the window usually does the trick. The trouble is I catch the attention of people walking past and one man even started to come to our house. It was a rather embarrassed Crone that went out to explain.
Still, it makes the mornings different.

Countdown - Another thing that I do in the mornings.
I've always liked Countdown although I'm hard pressed to understand why the woman putting up the letters and numbers has to be so dressed sexily. Couldn't we have someone like Father Ted's Mrs Doyle or, even better, a Mrs Doubtfire? I think that would be a brilliant move!
Have you ever watched it? I'm sure you know how it plays out; two contestants try to find words from eight letters chosen randomly with the contestant who has made the largest word gets the points. Every so many letter rounds come the numbers. Six numbers again randomly chosen are used to try and create the randomly computer chosen number.
Listen, I'm no thick head but trying to find long words in half a minute is not as easy as it sounds and when it comes to the numbers round I just glaze over. I've admiration for those contestants I'll tell you!
It's a decent enough programme if you like that kind of thing but I still don't see why the sexily dressed young woman has to be there.

It's very hard to choose a favourite flower...
... But if pressed I'll say my favourite will have to be the genus Lilium. Ok ok that's more than one favourite as there are many different types, all beautiful in their own way. I find it hard to grow lilies in the garden, slugs and snails really do love noshing on the tender young absinthe shoots that push their way up in late spring. One day I'll be cooing over my lily babies, the next I'm swearing revenge for the massacre of them.
So, you will see me buying bunches of those big white lilies from the supermarket. A luxury that I afford myself once or thrice a year. I do so love their elegance and simplicity. Such a shame they eventually wither away.


posted from Bloggeroid

Wednesday, 22 February 2017

The one about best friends.

At the grand old age of 57, last year, out of the blue and without any effort from me, I met a woman who has fast become my very best friend. I've never been one for friends, the solitary that I am. I enjoy being alone but on the other hand I also enjoy a bit of company on occasion. It has to be the right company though and through the years I've never really met anyone that I felt comfortable with. Not that I cared. I had my 'baby' sister anyway and no woman on this earth could compare to that close relationship I had with her. So I thought.

Let's go back to November 2015, shops chock-a-block with people buying for Xmas and a Crone that was getting increasingly frustrated with having to keep telling people in shops that I'm so sorry but I'm deaf and didn't hear you asking me to move out of the way. Finding the local town Facebook chat group I decided to enter and put a message that described me and explaining about my deafness in the hope that some people might recognise me in town and understand my difficulties. Well come on, there's only so much eye rolling and nasty comments this Crone can take.

Only a short while after I posted that I was contacted by a lady who explained that she was deaf in one ear, had fibro and would be pleased to be in touch with me. We hit it off straight away. Sharing the same sense of humour, the same honest way of the straight talker, not to mention almost identical likes of things including animals. It wasn't long before we were chatting away ten to the dozen exchanging thoughts that we'd never have dreamed of telling anyone else. It felt like we'd known each other for years, like a reunion of two souls that had lived before.

We became like sisters. Yes I never thought of say that of anyone out of loyalty to my real baby sister, but it's the only way to describe our friendship because, you see, I adore my friend in the way I adore my sister, I want to protect her, make her laugh, help her out, go out with her doing the things I used to with my sister when I lived upcountry*. I can't imagine life without her now. She's my rock in the ways my soul mate husband can't manage. Is it a sexual thing? Absolutely not! I'd get a bit cross with people suggesting such things, can't two people have a close friendship without others labeling them gay? **

Could this be that we've both met before in a different life? Maybe she was my sister, my niece, mother, daughter previously? I've no idea. I don't bother questioning it but just take it as a meeting that was meant to be.

You're never too old to find a best friend and you're never too solitary to let that person in. The universal powers know what they're doing, it's up to you to allow them to lead you.

Blessings of the goddess to you.

* I've not lived within reach of my sister for twenty years give or take a couple (my memory ain't great) as I moved 250 miles away to come and live down in the South West. I miss her so much.
**There's nothing wrong with being gay, I've met some wonderful gay people of both sexes over the years. I just get irritated with a society that labels people without finding out. The same applies to male/female best friends. I mean what is wrong with that? Why does society immediately think they're having a sexual relationship? I've been friends with many males over the years that I've not had the slightest interest in at all, nor did they have interest in myself.

Society really does need a kick up the bum.
posted from Bloggeroid

Sunday, 19 February 2017

Trouble with a capital D

Today I'm offering up for you to peruse, a short story. It's Sunday, you might have more time to read a long post. 😋
---
Trouble with a capital D.

Some people are born, not with a silver spoon in their mouths, but with a halo of goodness which stays with them until the day they expire. You know the kind, sailing through life without putting a foot wrong. If they do manage to upset someone or do something they shouldn’t, their previous goodness butters over it all.

Then you get the likes of me. Debbie Phillips.

As mother has repeated parrot fashion over the years, I was born trouble with a capital D.
"I knew you would be trouble. You weren’t even born before you caused me trouble. Making me so ill with morning sickness, oh I was so ill. Refusing to enter the world [probably knew in advance what I was in for, mother] and finally arriving over six weeks late, via forceps, causing me extreme pain and numerous stitches".

The umbilical cord had wrapped itself around my neck, and had tightened during my travel down the birth canal, so I guess it was rather traumatic for us all. Anyway, my first experience of life was an incubator for a couple of weeks being really poorly. As a result it was some days before mother saw the fruits of her hard work and instantly declared she’d given birth to a miniature Edward G. Robinson, an actor not noted for his good looks. On frequent occasions thereafter, she’d tell me I was an ugly duckling, but never mentioned my turning into a swan.

Probably because I never did.

For my first four years mother, father and I lived on a farm just over the yard from the big farmhouse, and to the left of the cattle sheds. Both my mother’s parents came from farming stock, and the various aunts, uncles and distant relations had farms in all the neighbouring villages. The one we lived on belonged to the Brandons, mother’s second cousins. I remember distinctly that home and life on the farm, even the day we left to go and live with Granny Talbots (Mother’s mum) when she became seriously ill.

From my perch on the wooden steps that led up to our door, I’d watch Mrs Brandon working in the scullery, wiping the newly collected eggs using a deft flick of the wrist in a twisting fashion, the corner of the blue cloth swishing her wrist each time. Or she’d be making butter and cheese, churning away in time to the songs she sung. Bored of watching I’d wander over on chubby legs and she’d turn to me with a smile cracking her rubicund face.
"Come to help have you, then?" And set me about watching the eggs closely.
"Now don’t take your eyes off them, they will run off cos they have little legs you see. No, it’s no use looking for them, they won’t show their legs until you aren’t looking."

Sometimes I’d help her gather the eggs, the wicker basket with the handles tied on with string, would slap against my legs as I wobbled along, leaning to one side to counter balance myself.

My favourite part was thrusting a hand under a sitting hen, feeling the scratchy warmth of her feathers, my fingers scrambling around for the smoothness of a shell, then withdrawing it oh so carefully and holding it aloft to show Mrs Brandon. During my later years, collecting eggs from my own hens, this pleasure never left me, and I’d always think back to that kindly old lady who had so much patience, even when I managed to drop a full basket of eggs smashing most of them.
‘Oh well. Never mind, plenty more to come. It’s no trouble, so hush the blarting now, come on let’s dry those beautiful big eyes of yours.’

My parent’s first real experience of what trouble their daughter could cause came when I was about eighteen months old. It seems I went out to play in the yard about ten o’clock one summer morning, and mother presumed I’d be in my usual place on the step. However, an hour or so later when she looked out to check on me, I wasn’t there and so she began to roam around the farmyard to find me.

"At first I wasn’t too worried, thinking there was no way you’d travel very far and the main road was miles off and not much traffic came up the lane in those days. Not like today. But could I find you? No. Me and Mrs B went to look in the orchard, and everywhere but no sign of you. I took everything out of my cupboards looking for you, you little terror. And poor Mrs B was crawling in hen houses and everywhere. My heart pounded until I thought it would burst from my chest and the more worried I got, the more my temper rose. Oh I was so going to spank your backside! Trouble, troublesome child!"

By now Mr Brandon and his workers had joined in the search, and all work stopped while the hunt for the missing toddler went on, the neighbouring houses were visited, and people had joined in to look for me. But farm animals needed feeding and Mr Brandon went into the sty to feed the sow who had only recently given birth. She was a miserable old sow and very protective of her babies, so he went armed with a stiff stick and a board to keep her from attacking him. As she wasn’t outside, he peered into the sty and did a double take, letting out a terrified yell. For there, fast asleep in the middle of the throng of sucking piglets, was the blonde haired child.

‘It took three men to get you out; the sow didn’t want them anywhere near you. And you were covered in pig lice and stinking to high heaven.’
Mother’s face will display signs of horror even now, and she will go on to tell how she had to stand me in a bowl of bleach water and scrub me down with a stiff brush, before spanking my little arse and putting me to bed with no tea.
The consensus seems to be that I suckled off the sow during my stay there as I never complained of being hungry or thirsty. I probably did, I’d eat anything as mother discovered when she caught me sharing the farm dogs’ dinner.

Whisky and Patty those dogs were called. Whisky was a Welsh corgi with a mean glint in his eye, renowned for inflicting damage on legs of those walking too close by. Patty, the Border collie, was no better but at least she gave notice of her intentions by barking first. Both lived outside and both were my best friends, allowing me to do anything with them. A favourite pastime was making daisy chains and decorating them both, much to the amusement of the farm men who left Patty’s flowery chain on when they took her off to work rounding up the cows. As she ran, snapping at the cows heels, flowers would be flying in a shower of white and green but there’d always be a few left stuck to her muck encrusted fur.
 
It was with these two accomplices that I disappeared a second time, some two years after the pig sty incident. This one I remember clearly, and even know why I did it.

At the weekend mother, dad, and I would make the trip up town to visit dad’s parents. They lived in Stoke, in the heart of the Midlands, in a dark terraced house on a cobbled street. Granddad Phillips was a retired Sergeant Major who couldn’t stop being in the Army and who ruled his house, and family, with an iron fist. When Granddad said move, you moved double quick. Grandma was the complete opposite, a tall, gentle hearted lady with a meek manner. You could breathe when there was only granny in.

This particular day, it must have been a Spring or early Summer day, mother dressed me up all nice and clean in a crisp new frock, white ankle socks and sandals. My long hair had been washed and brushed until it shone like a newly minted thrupenny bit, and put into two pony tails bound with dazzling white ribbon, whose ends were carefully cut into an inverted V-shape. I was then told to go and sit to wait in the car, while mother and dad finished getting ready.

Now, in my defence I have to say the idea of going to town used to fill me with horror. Not only did I not like the stifled, smoke ridden air of the place, I detested my Granddad - he was no fun! So what happened between my leaving the home door and getting to the car can be excused, I reckon. For some reason, my scrubbed up legs took me towards Whisky and Patty and from there to the farm gate, the one that the led to the cow pastures. Dogs trotting behind I lifted the latch and, without a second thought, slipped through. I remember looking down and realising that my socks and sandals were going to get rather grubby, so tried to tip toe over the oozing mess of poached earth and cow muck. Of course, the more I tried to be careful, the more I made mistakes (something that still happens to me in my old age), and it wasn’t long before I felt the softness of mud between my toes. A final clumsy jump and I was in the lush grass and running in the manner of a horse put out to field after a long spell in the stable.

Off I went, arms flailing, sometimes skipping, sometimes jumping, and enjoying the feel of my dress dancing round my legs. Then shaking my head up and down, side to side, feeling my pony tails whip with each movement. I really disliked ribbons in my hair, and when they whacked my eyes a few times, I came to a halt and tugged them out, tucking them in the waistband of my knickers for safekeeping. Even at that young age I knew enough not to incur mother’s wrath and she was so fond of ribbons and other girly gewgaws; rather sad that her daughter was such a tomboy and remained so until she had children of her own. But I left the pony tails in; I liked them because I thought they made me resemble the farm horses with their long luscious tails.

There was a copse in the next field, and that was where I was going. Getting there involved a scramble under barbed wire, and a squeezing through some brambles. The dogs made the crossing look easy so I followed suit, but dogs don’t wear dresses and at some point I got entangled in both barbed wire and brambles. Nothing that a quick yank couldn’t solve; the fact my brand new dress was torn in a few places never bothered me in the slightest. After such an adventure and having by now reached the copse, throwing myself down under a big horse chestnut tree, I relaxed by holding blades of grass between my two thumbs and blowing to produce a farting noise. I must have blown too hard at some point, as the sharp edge of grass cut my bottom lip which was rubbed free of blood with the hem of my dress.

It wasn’t long before I decided to climb a tree, finding the right one became the uppermost thing on my mind. How about this one? No, I can’t reach the lowest branch. This one? Oops, branch not strong enough I discovered as I fell back to earth with a wallop. The dogs took advantage of me being flat on my back and pounced on me, slobbering their sticky, gooey kisses on any bit of flesh they could find. No doubt I giggled, and rolled, and giggled some more, as both dogs decorated my dress with paw marks.

And then I saw it.

I had a way of moving when I was looking at things, creeping along half crouched, head jutted forward to peer closely at a baby bird in the nest, or a butterfly drinking in the sun on a flower. Aunt Sheila described my movement as ‘A ballet dancer with bad piles.’ And it is this way I moved now to peer closely at my new found treasure.

A large hole tucked behind a fringe of long, straggly grass, in the side of a steep dip in the ground. Loose soil and a scattering of pebbles lay strewn before the opening like a welcome doormat, and for added effect posies of dandelions each side. A fairy’s house, and what’s more, the door was open inviting me in. How could any child resist?
Tucking my dress into my knickers, on all fours I stuck my head in the hole, but only got as far as my shoulders. No matter how much I wriggled and squirmed, my chubby body wouldn’t fit. Sitting back up again, swotting the dogs out the way as their noses prompted them to explore, I decided to try feet first. A little more success this time, but only as far as my shoulders again. The darkness in the hole felt warm against my legs as they did a kicking swimming stroke. I lay there, arms stretched out above my head, watching clouds sailing across the sky. The fairies weren’t at home, that was for sure. Dog drool, cold and glutinous, fell on my cheek, bringing me back to earth, and it was at that point I remembered mother.

"One moment you were there, the next you’d vanished. I asked your father where was she? But he’s as bad as you, in bloody cuckoo land. I thought to myself, why couldn’t I have a normal child? But you have to go and take after your father don’t you, couldn’t be like us Talbotses. Oh no, had to be a Phillips through and through. Anyway, we looked all over, shouting and bawling your name, but no sign. Then just as your father was off down the lane to see if you were there, you came strolling through the field gate, in such a bloody mess. Only been down a badger hole, hadn’t you. Never seen anything like it. That lovely new dress in tatters it was. Oh I went mad! I didn’t half slap your arse. I grabbed your ear and frogmarched you home, had to strip you off and scrub you all over, put clean clothes on again. And you had the cheek to smile at me when you sat in the car. Trouble. Trouble with a capital D!"

It would be nice to say that as I grew older the troubles lessened, but not so. There is one thing though, one thing I console myself with - I might have got into a lot of trouble, but by gum, I had a barrel load of fun.

A very young Debbie with her uncle Ray. Standing on the front step of granny Talbot's house. 

posted from Bloggeroid

Wednesday, 15 February 2017

Early morning ramblings

What do animals dream about? It's a question that has never been answered to my satisfaction.

I've come to realise that since FMS /CFS came to live with me, I soon began to put every health blip down to that condition. Example, I get that chest pain that i simply cannot pronounce or even spell but I'll say it begins with Chondri, oh anyway I get that pain and I've become used to it. So every chest twinge I get now I shrug and say "it's OK, just fibro reminding me on its there." That attitude could be rather dangerous couldn't it?
Then again I can't keep checking BP and all, I'd become a hypochondriac. [Note to certain people, no I'm certainly and most definitely am not one already. Say that again and I'll show you that my tongue works very well!] I suppose I'll just go on doing as I do and ignore it unless it really really really hurts.😋

I awoke at 4 a.m just as I was being swallowed head first by Alice Cooper who had told me I was going to hell. Poor bloke must have terrible indigestion and bad breath because I've got a good dose of IBS and can't stop letting off. 😊

Kind of keeping to that topic, why didn't my husband laugh when I told him I'd got Donald in my gut after I'd just gifted the house with a rather obnoxious trump? No sense of humour that one.😋

My dog knows me better than I know myself. He can tell when I'm getting up to go the loo rather than getting up to sit in the living room. In the former case he doesn't move from his bed, doesn't even open one eye. Whereas in the latter case he'll immediately get up and go sit on the sofa, waiting for me to walk in with a cuppa. I've tried to trick him by putting the kettle on before I go the loo then going back to bed instead, but do you know, he bloody well knows I'm tricking him and will stay where he is in his bed. It's like living with Big Brother.


posted from Bloggeroid