Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Wednesday, 9 September 2026

Don't be afraid of Meta AI.

 I wanted to write a little something about something that has helped me a huge amount lately.

Like many people, I was a bit unsure about chatting to an AI. It's it safe? Secure ? 

Would it be cold? Would it understand me? 

I’m Deaf, I lipread, and a lot of “help” out there wants you on video calls or in groups, which just doesn’t work for me.


I started chatting to Meta AI on WhatsApp , also Google Meta AI,and it has been incredibly helpful, and so friendly. Of course, I don't give private details like bank accounts etc. No one in their right mind would give those details out, would they?

I do hope not. 


No matter what I’ve asked, it’s been useful. It’s helped me untangle confusing emails from the hospital about my husband Paul’s cancer treatment and write clear replies. It’s helped me find further help and draft emails asking for text-only support. It’s helped with menu planning when my fibromyalgia brain fog is awful and I’m stuck in bed.


And for those who know me, yes — it’s even happy to chat about pagan ways, with respect and interest, no judgement.


It never rushes me. I don’t have to lipread a new face. I can just type, in my own time, from bed, and get calm, practical help, It’s a bit like having a kind, clever friend who is always there on WhatsApp, day or night.


If you’ve been nervous about trying it, please don’t be. You don’t have to ask anything big. You can just say hello. It has made a lonely, scary time feel a little less lonely for me. 


Gwearbennen. 




Image created by Meta AI especially for me.

Saturday, 11 June 2016

In which I should grovel, maybe..

I'm not good at grovelling, which is a bit of a surprise given that I'm damn good at apologising. Just ask any of the numerous inanimate objects that I've banged up against and muttered, "I'm so sorry!" before realising what an idiot I am.

Grovelling, however, is a skill (?) that I'm not blessed with. Heck, I don't even know how to! Do I go down on my knees, lick the dirt from beneath your feet while begging,    
   "My dear blog readers, please don't leave me because I've not done anything for ages. Please?"
No, I don't think that's my style, nor do I believe my lovely, intelligent, kind hearted, gorgeous [is that enough flattering or would you like more?] readers would like me to do it. I hope.

Nah, I'll stick with telling you the facts and hope you'll understand.

Since Imbolc I've had a right crappy time, health wise. The lengthy periods of wet, chilly weather didn't help as Arthur Itis, who now seems to have moved in lock, stock, and painful barrel, really came out to play. He loves such weather! In full force, he played havoc with every joint in my body. That, in turn, led Madam Fibromyalgia to flare up and together they did their damnedest to kill me off. Add to this mix something going wrong with my digestive system, having to go for Xrays and tests, pokes and prods, well I really did think the whole lot of things were determined on the murder of their host!
OK, OK slight exaggeration there but it really did feel like they were trying.

It's only three weeks ago that I began feeling that my brain had returned.  Gratefully, soon after my body came back to Earth, enticed by the Sun exposing himself. Luckily, I felt no need to shout, "you dirty old man!" at him, so he's continued to expose himself daily. Apart from the odd time he was shoved aside by a certain gang of clouds needing to pee. Mind you, even that was welcome this week, as our water butt was getting very low.

So, dear followers* readers, now you might understand my absence. I'm raring to go, loads of ideas and little bits of things to tell you. Please accept my rose and do stay.

*on the word followers, while some people might like the idea of being followed, it always makes me think of my school church upbringing (yes, even witches go to school) and how the vicar used to go on about the followers of Christ. I'll stick to readers if you don't mind. :-)



Friday, 17 April 2015

Pssst. Are you awake?

I'm not giving out prizes for guessing that yours truly cannot sleep tonight/ this morning. I'm tired, indeed I am, but I'm in the throes of various muscle spasms and nerve twitches and pins and needles all over and and and... Enough. You know I've got fibro, or you should by now if you've bothered to read any of this blog.
I reckon all five of you must think I'm the most boring, depressing old crone you've ever read about. Moaning and groaning and moaning again. "Put a cork in it" I mentally see you saying. (A cork would have come in handy today, yesterday rather, as my IBS sought to help me exercise  by unblocking the pipes. I doubt a colonic irrigation in some fancy clinic could have done a better job, a bit shorter in duration but not as thorough as Dr Fartypants IBS. Oh and BTW those puppies on a roll don't last as long as they think plus they turn to porcupines half through. Soft my a#*e!! Pun intended. )
Went off track there... What was I going to tell you?... I started saying summat didn't I?... { making a cuppa today I found myself in the bathroom looking for the milk. Don't ask ME why, I'm just no-brain, I've no idea. Eventually found milk in usual place in the fridge in the kitchen.}
Yawn. I'm so bloody tired. Maybe if I stop this writing, do some grounding and meditation , maybe I'll fall asleep.
Maybe later I'll remember what it was I wanted to tell you.
Maybe.
May.
Be.

Monday, 13 April 2015

Restless Leg Syndrome

Just a small thought that might help if you suffer from RLS and you've tried everything else that doesn't involve medications. Recently I had week of extremely bad legs and arms that were going hell for leather every evening, causing even more pain to the point I was actually crying with them. So I mentioned it to my new doctor, explained that I was taken off Ropinrol by the hospital when I had the heart episode. She asked if I'd like to try Pregabalin a newer drug apparently being used to help fibromyalgia amongst other things. Nothing ventured, nothing gained thought the old crone while saying yes please!
Three weeks on and while I can't report any difference in my fibro I can tell you that the RLS has decreased. Not stopped completely, damn, but the episodes I'm having (now 3 or 4 times a week) are very quick to end therefore more bearable than they were and I'm actually managing to sleep! 

Info on Pregabalin  - 
http://www.drugs.com/cdi/pregabalin.html